Join Our PCDH19 Facebook Support Group And Connect With Other Families Supporting Each Other And Working Together To Make A Difference For Their Loved Ones!
the PCDH19 Alliance Welcomes you
Our mission is to improve the lives of children and families who are affected by PCDH19 Female Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.
the PCDH19 registry is now enrolling!
the PCDH19 Professional and Family Symposium Was a Success. Thanks to all that made it possible and all who attended in person and online.
Recent PCDH19 Alliance Fundraisers, Thank You!!