Welcome

Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure.
We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.
LEARN MORE ABOUT WHO WE ARE

Newly Diagnosed?

We are so glad you have found us. Wherever you are on your personal journey with PCDH19 Epilepsy, we have been there, and you are not alone. We offer a lot of support and resources – here are some ways you can reach out and get involved:
JOIN OUR
JOIN OURFACEBOOK SUPPORT GROUP
Connect with other families and friends on our private Facebook support group for PCDH19 epilepsy. Let’s support each other, share with each other, and work together to make a difference for our loved ones!
JOIN NOW & INTRODUCE YOURSELF
TALK TO
TALK TOJULIE WALTERS
Julie co-founded the PCDH19 Alliance after her daughter Violet was diagnosed. As the organization’s president she’s here to support you, answer your questions, and point you in the right direction.
GET IN TOUCH WITH JULIE
ENROL IN THE
ENROL IN THEPCDH19 REGISTRY
If you or your child has been diagnosed with PCDH19-Related Epilepsy we urge you to enrol in our registry, run by researchers at Boston Children’s Hospital. Your participation could help us find a cure.
LEARN MORE
CLICK HERE FOR A FULL LIST OF RESOURCES & INFORMATION

SPREADING

Hope

GIVING

Support

FINDING A

Cure

Upcoming Events

JUNE 4 - 5, 2016 | SAN FRANCISCO, CA
2016 PCDH19 EPILEPSY SYMPOSIUM
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Help us find a cure. The PCDH19 Alliance is 100% volunteer run and there are so many ways you can get involved.

GET INVOLVED