The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

July 15, 2019

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Welcome

Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure.

 

We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

PCDH19 Epilepsy is a condition with a wide spectrum of severity in seizures, cognitive delays and other symptoms, which are all caused by a mutation of the PCDH19 gene on the x chromosome... (more here)
We are so glad you have found us. Wherever you are on your personal journey with PCDH19 Epilepsy, we have been there, and you are not alone. We offer a lot of support and resources.
Help us find a cure. The PCDH19 Alliance is 100% volunteer run and there are so many ways you can get involved. (more here)

Help us find a cure. The PCDH19 Alliance is 100% volunteer run and there are so many ways you can get involved.