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Improving the lives of those living with PCDH19 Epilepsy through research and support

Welcome

Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure.

 

We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.

PCDH19 Epilepsy is a condition with a wide spectrum of severity in seizures, cognitive delays and other symptoms, which are all caused by a mutation of the PCDH19 gene on the x chromosome... (more here)
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We are so glad you have found us. Wherever you are on your personal journey with PCDH19 Epilepsy, we have been there, and you are not alone. We offer a lot of support and resources.

Help us carry out our mission to find a cure, better treatments and support families. 

There are many ways to support the PCDH19 Alliance. You can learn more about them here.

The PCDH19 Alliance needs you. There are so many ways you can get involved.

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