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Our mission is to improve the lives of children and families affected by PCDH19 Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure.
We’re also here to provide information and support to affected families, assist research efforts and ensure that no family suffers without a diagnosis & the best medical treatment.
We are so glad you have found us. Wherever you are on your personal journey with PCDH19 Epilepsy, we have been there, and you are not alone. We offer a lot of support and resources.
Help us find a cure. The PCDH19 Alliance is 100% volunteer based and there are so many ways you can get involved.
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