the PCDH19 Alliance Welcomes you
Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy (Girls Clustering Epilepsy). The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.
PCDH19 Professional & Family Symposium.
More details coming soon
Marinus announces Clinical trial with Ganaxolone for PCDH19
The PCDH19 Alliance is excited, hopeful and grateful to be collaborating with Marinus on the first ever clinical trial for PCDH19 Epilepsy. For more information, visit the Marinus Website or check our newsfeed to the right for the latest information.
Dr. Gail Farfel, Chief Clinical and Regulatory Officer of Marinus Pharmaceuticals, stated,
the PCDH19 registry is now enrolling!
Recent PCDH19 Alliance Fundraisers, Thank You!!
Join Our PCDH19 Facebook Support Group And Connect With Other Families Supporting Each Other And Working Together To Make A Difference For Their Loved Ones!