About Sophie

Originally from Illinois, Sophie has lived in Denver, Colorado for the last two years and works as a special education teacher. She graduated from the University of Missouri with her Bachelor of Science in Special Education, and completed her Master's Degree at Vanderbilt University with a specialization in Severe & Profound Disabilities. 

Sophie has two brothers, one of whom has another type of rare epilepsy called Dravet Syndrome. Her brother, who lives with multiple comorbidities, has inspired her dedication to support individuals with disabilities and their families in various ways.

Help us find a cure. There are so many ways you can get involved.

The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

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