New Treatments – How Much Longer?
After months - maybe even years - of feeling like a hamster on its exercise wheel chasing a solution to your child’s health issues, you...
Finding Hope: Parenting a Child with Life-threatening Epilepsy
On the first morning of our much-anticipated annual family vacation, my 11-year-old daughter Emily learned that a beloved Disney actor...
Tiny Miracles
Celebrate the successes; remember that in between all the challenges, there are tiny miracles: by Hillari Pendergraft The other day at my...
My Daughter With Epilepsy: Reflections From a Father
Sloan Olivia Holland. The name of the girl I knew would be trouble as soon as the doctor told my wife Jennifer and I that we would be...
The Car Seat - to - Booster Seat Struggle
I am hoping to help - especially those of you with toddlers or younger children - or those of you beginning this battle yourself - to...
PCDH19 Conference live-blog
Welcome to the 2018 PCDH19 Epilepsy Professional & Family Symposium. We know that not every family facing PCDH19 Epilepsy is able to...
Surviving the Hard Days
This week researchers from University California San Francisco and Boston Children's Hospital released a study based on data from the...
A hike from the heart- PCDH19 Life
Parenting a child with PCDH19 sometimes feels like climbing mountains.
PCDH19 Moms
Moms of kids with PCDH19 are often fierce advocates, medical managers and public educators. First and foremost though, we are moms. We...
Another Year in Holland: Life as a Parent of a Child with PCDH19
The decorations are put away, the ball has dropped, kids are heading back to school and parents around the world are officially starting...
