On Becoming an Epilepsy Advocate
Years ago, when we were just starting on our journey with PCDH19, someone suggested that I work to raise awareness about epilepsy and...
Dear Parent: It’s OK to be where you are.
When my daughter received her diagnosis of PCDH19, I fell apart. I had days when I couldn’t get out of bed and times when the grief...
Preparing for another (school) year with epilepsy: Five tips to make this your best year yet
In the next few weeks, many of our kids will be heading off to school. This can be a stressful time for any family but especially so when...
2016 PCDH19 Epilepsy Symposium
Welcome to the 2016 PCDH19 Epilepsy Professional & Family Symposium. We know that not every family facing PCDH19 Epilepsy is able to...
