PCDH19 Alliance Conferences

2022 Alliance Research and Family Conference

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Our 2022 Family & Professional Conference will take place July 23-24 in Sonoma County of California! After having to push back the 2020 conference due to COVID, we are more excited than ever to bring together the top researchers, clinicians, and family impacted by PCDH19 in person again to learn about the latest research, discoveries, and treatment protocols.

Sibling Camp Available This Year!
For the first time ever, we will be offering a sib camp on both Saturday & Sunday of our conference. It will take place during the same times as the conference sessions. This will be open to siblings without PCDH19 ages 5-18 and will include fun activities as well a chance to meet others who have similar experiences. Cost will be $50 per child for the whole camp (2 days). Sign up is included in the registration form.

Hotel Information

Double Tree Hotel
One Doubletree
Rohnert Park, CA 94928
707-584-5466

Book here to get our group rate of $220/night (price available for July 22nd-24th)
Use Special Rate, Group Code: CDTUCS

Travel Information

Local Airports:
- San Francisco International Airport (SFO): approximately 62 miles from hotel
- Oakland International Airport (OAK): approximately 70 miles from hotel
- Charles M. Schulz–Sonoma County Airport (STS): approximately 14 miles from hotel

Previous Alliance Conferences

The PCDH19 Professional and Family Conference is a biennial international event focused on bringing together the leading researchers and clinicians to present the latest information, discoveries and treatment protocols. Families from all over the world attend to learn the latest and to bond with other PCDH19 families.

2021 Virtual Townhall

2018 Conference Videos

2018 Conference Photos

2016 Conference Photos

2016 Conference Photos