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Join date: Jan 13, 2020
Posts (2)

Jul 24, 2021 ∙ 1 min
Standing by our Sister: The Sibling Impact of PCDH19
We can’t imagine our family’s life without Norah. Norah was diagnosed with PCDH19 Epilepsy at only 9 months old. She is now 15 years old...
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Apr 18, 2021 ∙ 5 min
Through Claire's Eyes: A Woman's Thoughts on Living with Autism and PCDH19 Epilepsy
April is autism acceptance month. In this blog today I want parents of girls to be aware that not all girls show the “typical autism...
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