Our Team Members

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Because of Elliot: An Adult Sibling's Reflection on Growing up with a Brother Who Has a Rare Disease

My Perspective: Growing Up With PCDH19 Epilepsy

Developmental Disabilities and Menstruation

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926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102