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PCDH19 Alliance Conference 

Our 5th Biennial Conference is happening on June 1st and 2nd, 2024, at the DoubleTree by Hilton, Sonoma County, CA.

We are pleased to announce that the PCDH19 Professional and Family Conference will be held in Sonoma County, California on June 1-2. This conference is a biennial international event focused on bringing together the leading researchers and clinicians to present the latest information, discoveries and treatment protocols. Families from all over the world attend to learn the latest and to meet and bond with other PCDH19 families.

 Registration is now available! You won't want to miss it.
Please email Julie with any questions at

PCDH19 Activity Room 

The PCDH19 Activity Room offers fun activities for PCDH19 children and their caregivers on Saturday, June 1 and Sunday, June 2nd.


The Play Room is an available space for families to come and go as needed, with activities and toys which are designed to entertain and accommodate a range of abilities. Breakfast and lunch will be provided. More details to come. 

A caregiver who must be 18 or older and present at all times. Please note, none of our activities are drop off and there are no medical professionals on site.

Learn more about our previous Conferences by clicking the button below.

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