Conference Event Image 2024 (1240 x 400 px)-4.png

PCDH19 Alliance Conference

REGISTRATION IS OPEN!
Our 5th Biennial Conference is happening on June 1st and 2nd, 2024, at the DoubleTree by Hilton, Sonoma County, CA.

We are pleased to announce that the PCDH19 Professional and Family Conference will be held in Sonoma County, California on June 1-2. This conference is a biennial international event focused on bringing together the leading researchers and clinicians to present the latest information, discoveries and treatment protocols. Families from all over the world attend to learn the latest and to meet and bond with other PCDH19 families.

Registration is now available! You won't want to miss it.
Please email Julie with any questions at julie@pcdh19info.org

PCDH19 Activity Room

The PCDH19 Activity Room offers fun activities for PCDH19 children and their caregivers on Saturday, June 1 and Sunday, June 2nd.

The Play Room is an available space for families to come and go as needed, with activities and toys which are designed to entertain and accommodate a range of abilities. Breakfast and lunch will be provided. More details to come.

A caregiver who must be 18 or older and present at all times. Please note, none of our activities are drop off and there are no medical professionals on site.

Venue & Travel Information

DoubleTree by Hilton Hotel Information

One Doubletree Drive

Rohnert Park, CA 94928

707.584.5466

Hotel Website (Discount codes & room blocks coming soon, please check back)

Ground Transportation from Santa Rosa Airport

Travel Distance: Approximately 14 miles

Travel times and costs below are estimates and final travel times are dependent upon Bay Area traffic. If traveling during commute hours, expect delays.

Uber

Fee: $30-35USD; per car

Travel time: 15-20 minutes

Driving directions from airport to DoubleTree hotel:

Starting on Airport Blvd , take a slight right turn for US-101. Take exit 484A onto Golf Course Dr, turn left on Golf Course Dr. Turn left onto DoubleTree Dr. Arrive at DoubleTree by Hilton Hotel Sonoma Wine Country.

Ground Transportation from Oakland International Airport

Travel Distance: Approximately 62 miles

Travel times and costs below are estimates and final travel times are dependent upon Bay Area traffic. If traveling during commute hours, expect delays.

Uber

Fee: $95-150 USD; per car

Travel time: 60 minutes

Driving directions from airport to DoubleTree hotel:

Keep left onto Airport Drive. Take a slight right turn for I-880 North. Take exit 46B onto I-880 North. Take exit 13B on the right onto I-580 West. Take exit 484 toward Golf Course Dr. Turn left onto Commerce Blvd. Turn right onto Golf Course Dr. Turn left onto DoubleTree Dr. Arrive at DoubleTree by Hilton Hotel Sonoma Wine Country.

Ground Transportation from San Francisco International Airport

Travel Distance: Approximately 61 miles

Travel times and costs below are estimates and final travel times are dependent upon Bay Area traffic. If traveling during commute hours, expect delays.

Uber

Fee: $95-150 USD; per car

Travel time: 60 minutes

Driving directions from airport to DoubleTree hotel:

Keep right toward San Bruno. Keep left for I-380 West. Take exit 5A for I-280 North. Take exit 49B on the left for CA-1 N. Take a slight left turn onto 19th Ave. Take exit 484 toward Golf Course Dr. Turn left onto Commerce Blvd. Turn right onto Golf Course Dr. Turn left onto DoubleTree Dr. Arrive at DoubleTree by Hilton Hotel Sonoma Wine Country.

Conference Speakers

Dr. Joseph Sullivan, MD

Symposium Chair

Professor Hisashi Umemori, MD, PhD

Boston Children's Hospital Harvard Medical School

Dr. Antonio Napolitano, PhD

IRCCS Bambino Gesù Paediatric Hospital

Dr. Julie Ziobro, MD, PhD

University of Michigan Assistant Professor of Pediatrics, Division of Pediatric Neurology

Professor Paul Thomas, PhD

University of Adelaide

Dr. Lacy Smith, MS, CGC

Boston Children's Hospital Harvard Medical School

Archana Ramesh

DPhil Student in Clinical Neurosciences, University of Oxford

Dr. Keena Melville

Literacy Expert with Expertise in Developmental Delay and Autism

Stephanie Gandomi, MS, LCGC

PCDH19: A Practical Workshop

Le Shepard, MA, LPC-Supervisor

Grief & Trauma Among Parents of Kids with PCDH19 Epilepsy

Dr. Nilika Shah Singhal, MD

Associate Professor of Neurology & Pediatrics
Bridges Coach, UCSF School of Medicine

Covid Protocol

The health and safety of all attendees at the 2024 PCDH19 Professional & Family Conference remains our top priority. Between now and the event, we will be closely monitoring the venue’s COVID policies, government mandates and policy changes, Centers for Disease Control and Prevention (CDC) guidelines, and public health advancements. As information pertaining to the virus continues to develop, we will adjust our approach as needed and keep you up to date with new developments to ensure a coordinated effort and a safe environment for all PCDH19 conference attendees.

Learn more about our previous Conferences by clicking the button below.

LEARN MORE

A CURE IS OUT THERE. HELP US FIND IT.

PCDH19 Alliance Conference

REGISTRATION IS OPEN!
Our 5th Biennial Conference is happening on June 1st and 2nd, 2024, at the DoubleTree by Hilton, Sonoma County, CA.

Conference Speakers

Learn more about our previous Conferences by clicking the button below.

FOLLOW US

The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

A CURE IS OUT THERE. HELP US FIND IT.

PCDH19 Alliance Conference

REGISTRATION IS OPEN! Our 5th Biennial Conference is happening on June 1st and 2nd, 2024, at the DoubleTree by Hilton, Sonoma County, CA.

Learn more about our previous Conferences by clicking the button below.

REGISTRATION IS OPEN!
Our 5th Biennial Conference is happening on June 1st and 2nd, 2024, at the DoubleTree by Hilton, Sonoma County, CA.