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We Have the Will. There is a Way.

The PCDH19 Alliance is dedicated to vetting and supporting the most promising research. We fund ongoing research into the PCDH19 gene and potential treatments, and every day we move closer to fulfilling our mission to find a cure.
Below is information on the latest scientific news, our registry, and our research grant program.

Research Grant Program

The PCDH19 Alliance Research Grant Program awards one year grants between $25,000 and $75,000.

Pipetting Samples

The PCDH19 Epilepsy


Researchers at Boston Children’s Hospital are running a registry for individuals with PCDH19-Related Epilepsy. Your participation could help us find a cure.

Alliance-Funded Research

Thanks to your generous donations we are proud to invest in the most promising PCDH19 Research around the world. These research teams are currently focused on understanding why mutations in the PCDH19 gene can cause epilepsy, autism and other co-morbidities of PCDH19 Epilepsy.

PCDH19 Alliance Conference

The PCDH19 Professional and Family Conference is a biennial international event focused on bringing together the leading researchers and clinicians to present the latest information, discoveries and treatment protocols. Families from all over the world attend to learn the latest and to bond with other PCDH19 families.

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