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About the Alliance


Our Story

The PCDH19 Alliance was started by three parents of children affected by PCDH19 Epilepsy in an effort to support ongoing research into this debilitating disorder.

Our mission is to improve the lives of children and families who are affected by PCDH19 Related Epilepsy. The Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.

Fund the Most Promising Research of PCDH19 Epilepsy
 Our goal is to find therapeutic

treatments and ultimately – a cure.

What we do:

Raise Awareness Through Fundraisers & Conferences
Find an upcoming conference or fundraiser in your area.

Or – host on your own.

Support Families Affected by PCDH19 Epilepsy
We offer a lot of resources from a

private support group to patient

assistance grants.

Our Values

Caring for those we support and those who support us.
Every dollar donated is accounted for.
Sharing the successes, as well as the struggles.

State Non-profit Disclosures

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