The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

July 15, 2019

Please reload

  • Facebook App Icon
  • Twitter App Icon
  • Instagram Social Icon
 
 

Our Story

The PCDH19 Alliance was started by three parents of children affected by PCDH19 Epilepsy in an effort to support ongoing research into this debilitating disorder.
 

Our mission is to improve the lives of children and families who are affected by PCDH19 Related Epilepsy. The Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.

Fund the Most Promising Research of PCDH19 Epilepsy
 Our goal is to find therapeutic

treatments and ultimately – a cure.

What we do:

Raise Awareness Through Fundraisers & Conferences
Find an upcoming conference or fundraiser in your area.

Or – host on your own.

Support Families Affected by PCDH19 Epilepsy
We offer a lot of resources from a

private support group to patient

assistance grants.

Our Values

Compassion
Caring for those we support and those who support us.
Transparency
Every dollar donated is accounted for.
Honesty
Sharing the successes, as well as the struggles.

State Non-profit Disclosures