The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

July 15, 2019

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We’re Here to Support You

We believe that research is our greatest hope, and we also believe that supporting children and families suffering today is our duty. Look over the collection of resources below, and let us know if you have any questions.

Patient Assistance Grants

We believe that research is our greatest hope, and we also believe that supporting children and families suffering today is our duty.

PCDH19 At School

Here's an introduction to IEPs and 504s.

More Resources

If you're looking for additional resources outside of the Alliance, check out our list of great organizations.