Besides the emotional and physical impact that PCDH19 has, the financial strain on a family dealing with PCDH19 Epilepsy can be devastating in itself. If we can help a child or adult obtain necessary medical equipment, therapy, and related devices that would otherwise be out of reach, we consider it a privilege.
This program offers grants to patients with PCDH19 Epilepsy to assist with the costs of necessary medical expenses associated with PCDH19 Epilepsy which are not covered through private insurance or other assistance programs. This program is open to all patients who meet the program requirements. Once funds are depleted for a Patient Assistance Grant session, the program closes for the remainder of the year. During years when we hold our PCDH19 Alliance Professional and Family Conference we offer assistance grants for conference travel and lodging.
Our current grant cycle is now open. Please do not submit applications before the cycle begins, as we cannot consider them. Application packets must be complete and include supporting documentation before they are placed in queue for review. To learn more or apply, download the documents below.