The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

July 15, 2019

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Bear-ers of Hope

The Alliance funds research, supports families, and advocates on behalf of PCDH19 patients, with one singular mission at the heart of everything we do: to provide hope to the brave individuals living with PCDH19 and their families!

As part of our patient assistance program, and thanks to generous donations specifically for this purpose, we are able to send Hope home to those bravely living with PCDH19 in the form of a sweet plush bear. Our cuddly, comforting Hope the Bear is available free of charge until our current supply runs out.  

Please include all requested information to ensure that we can ship the bear to you. 

Please email Julie if you have any additional questions about Hope.