top of page


Everyone Affected by PCDH19 Epilepsy Has a Different Story

Some children’s seizures cluster more than once a week, others cluster far less frequently. Some have longer seizures, some shorter. Many start having seizures before they are a year or two old. Some gain seizure control with medication or the onset of puberty, while others do not. Some children are also diagnosed with Autism Spectrum Disorder, and/or can exhibit behavioral and psychological challenges, while others are mentally and cognitively typical.

What they all seem to have in common is their determination and strength. Please take some time to get to know them through the words of their loved ones.

bottom of page