Another Year in Holland: Life as a Parent of a Child with PCDH19
The decorations are put away, the ball has dropped, kids are heading back to school and parents around the world are officially starting...
On Becoming an Epilepsy Advocate
Years ago, when we were just starting on our journey with PCDH19, someone suggested that I work to raise awareness about epilepsy and...
Dear Parent: It’s OK to be where you are.
When my daughter received her diagnosis of PCDH19, I fell apart. I had days when I couldn’t get out of bed and times when the grief...
Preparing for another (school) year with epilepsy: Five tips to make this your best year yet
In the next few weeks, many of our kids will be heading off to school. This can be a stressful time for any family but especially so when...
2016 PCDH19 Epilepsy Symposium
Welcome to the 2016 PCDH19 Epilepsy Professional & Family Symposium. We know that not every family facing PCDH19 Epilepsy is able to...
