PCDH19 Moms

Moms of kids with PCDH19 are often fierce advocates, medical managers and public educators. First and foremost though, we are moms. We celebrate our children’s victories and mourn their heartaches. We cuddle our kids in the middle of the night and kiss boo boos. In honor of Mother’s Day, we asked some of our PCDH19 moms to share their favorite memories with their children. Their stories are below. Julie Julie said this photo captures one of her most treasured memories with Violet. Hiking was a huge part of their lives before epilepsy and behavioral issues complicated that. Julie said this was the last hike she took Violet on without fear of her seizing and falling or melting down or overhe

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

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