My Daughter With Epilepsy: Reflections From a Father

Sloan Olivia Holland. The name of the girl I knew would be trouble as soon as the doctor told my wife Jennifer and I that we would be having a girl. At first I was elated on the outside and kind of bummed on the inside. I say bummed probably for the same reason a lot of fathers do. I recalled being a young teenager and the girls we used to chase around relentlessly and my thought would always go to “I guess it’s payback time”. Then you add her mother’s good looks and her spunky attitude and I knew nothing but constant worry was in my future. Little did I know it would be for something other than boys. Like most fathers, there is an attachment to my daughter that I cannot describe in words ot

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

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