Letter of Medical Necessity: What is it? Why do I need it? How do I write it?

First, a little background before we begin; I am a single mother of three. My oldest daughter is 19-years-old and diagnosed with PCDH19 (the umbrella for her severe autism, severe global delays, epilepsy, significant cognitive delays, non-verbal). She is a large, strong woman who also has significant behavioral challenges due to PCDH19. She is my lifetime guide and my shining light; I cannot imagine one day without her. My daughter comes with her share of challenges and it can be exceptionally difficult to navigate the special needs paperwork and red tape, especially when trying to improve her quality of life. My hope is that this blogpost will offer a proactive approach for you as you seek

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

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