PCDH19 Conference live-blog

Welcome to the 2018 PCDH19 Epilepsy Professional & Family Symposium. We know that not every family facing PCDH19 Epilepsy is able to join us in Sonoma this weekend so we'll be sharing all the happenings here. My name is Le Shepard and my daughter, Alyssa, has PCDH19. I’ll be live blogging and summarizing the points that stick out to me as a parent. I’m not a medical doctor so please don’t consider anything I write to be medical advice but I’ll do my best to keep you updated as the day progresses. Bookmark this page and check back throughout the weekend. Key terms and notes We often say our kids have PCDH19. Actually, they have mutations in the PCDH19 gene. Some of the researchers will be

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

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