Transitioning to Adulthood With PCDH19 Epilepsy

When your child has significant health & support needs, every approaching transition can feel daunting, but the transition to adulthood is inarguably one of the most intimidating. For many in our community, the diagnosis of PCDH19 Epilepsy also comes with other comorbidities such as an intellectual disability ranging from mild to severe. While an 18th birthday is typically symbolic of more independence, many of our children will continue to require some level of support throughout their entire lives. The questions of what happens during this major transition time can be overwhelming, and it can bring on feelings of helplessness, fear, or even avoidance. The Importance of Being Prepared Karin

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). We are 100% volunteer run. All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

Copyright 2019 PCDH19 Alliance

926 A #212 Diablo Ave, Novato, CA 94947

EIN: 45-4020102

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